H Wendy, I am sorry to hear, you are having such a rough time. Unfortunately it sounds so very familiar. I am in exactly in the same situation.

I have been on the anti-tnf Cimzia injection for 2 years, and it has been up and down all the way, reflected in my CRP blood test. It can be down to 4 one month and then rise to 78 the next. At the moment it is 28, and I feel awful: pain in my shoulders, my knuckles, have difficulty walking, because of my knees. Had one knee drained 5 weeks ago with a steroid injection, but it did not help much. On top of that the awful tiredness, I am sleeping 10-12 hours a night, when my shoulder joint lets me.

The doctor is now talking about Rituximab, which you say, you have tried. How long have you been on it? I have not been so keen, as it seems so involved.

I am hoping, when the warmer weather finally arrives, we will all start to feel better. this cold and gloomy weather really gets me down. We need the warm sun with D-vitamin.

Warm greetings,

Merete

Hello wendy I'm jenni

I feel the ups and downs but I've just had a really helpful programme run at the hospital.
It's worked on my mental capacity to cope with the wild swings of thinking I'm super woman that can and will conquer all to being a rediculous feeling heap

Basically it's a CBT programme run by the pain clinic
I needed some help to even things out and do you know, it's really Been a big help and the techniques to tackle unhelpful thinking and recognising the cycles of thinking, pain and behaviour is part of this process.

Try and get referred to the pain clinic

Jenni